Cindy was finally (2.5 months) approved for compassionate care use of repotrectinib (repo). This is a drug that is a second generation of her previous drug larotrectinib (laro) which completely stopped and we thought eliminated her cancer. Unfortunately, the cancer developed resistance to laro and has come back causing pain and nausea. So next week she will undergo scans and lab work in preparation for repo. The tough part will be stopping the laro for 4-5 days prior to starting the new drug. Daily as her dose time approaches she begins to feel cramping and pain, as such, she will likely have a brutal end of next week.
Please pray for the pain to be manageable, as most who have gone through these withdrawals describe it as excruciating, and that the new drug works.
Thank you.
